Friends of FSH Research

Founded with the mission to accelerate discoveries leading to treatments or cures for Facioscapulohumeral Muscular Dystrophy (FSHD), Friends of FSH Research is a non-profit organization dedicated to funding and managing a robust portfolio of research projects. The organization focuses on supporting a pipeline for drug discovery, ensuring that all funded research adheres to principles of transparency, reproducibility, and transformative science. Their efforts are aimed at inspiring hope and delivering tangible results for individuals affected by FSHD.

Friends of FSH Research collaborates with world-class scientists and is supported by a dedicated board, staff, and volunteers. Notable achievements include significant advancements in the understanding of FSHD and the development of potential therapeutic strategies. The organization has made a substantial impact by fostering a collaborative research environment and accelerating the pace of scientific discovery, thereby bringing the medical community closer to finding effective treatments for FSHD.