Parent Project Muscular Dystrophy - aVenture Non-Profit Research
Parent Project Muscular Dystrophy
Operating Status: Operating
US-based nonprofit, Parent Project Muscular Dystrophy, funds research and promotes advocacy for Muscular Dystrophy treatment.
Founded
1994
Location
Hackensack, NJ, US
Parent Project Muscular Dystrophy is a nonprofit organization dedicated to ending Duchenne muscular dystrophy. Based in Hackensack, New Jersey, the organization focuses on accelerating research, raising awareness, and advocating for optimal care and treatment options for individuals affected by Duchenne. PPMD works to ensure that the Duchenne community has a voice in federal and local politics, as well as in conversations with regulatory agencies.
The organization's efforts include funding research initiatives, demanding optimal care for families affected by Duchenne, and striving to ensure access to approved therapies. PPMD actively engages in policy impact and works to raise awareness about Duchenne muscular dystrophy. Through various programs and initiatives, the organization aims to improve the lives of those living with Duchenne and ultimately find a cure for the condition.
