International Rett Syndrome Foundation

Founded in Cincinnati, the International Rett Syndrome Foundation (IRSF) is a nonprofit organization dedicated to advancing research and advocacy for Rett syndrome, a rare neurological disorder. The foundation's core mission is to accelerate full-spectrum research to cure Rett syndrome and empower families with information, resources, and support. IRSF offers a range of services including funding scientific research, providing family support programs, and advocating for policy changes to improve the lives of those affected by Rett syndrome.

Notable figures affiliated with IRSF include Dr. Theresa Bartolotta, a speech-language pathologist with extensive clinical experience, who contributes to the foundation's communication initiatives. The organization has achieved significant milestones in raising awareness and funding for Rett syndrome research, participating actively in events like Rare Disease Week on Capitol Hill. Through its persistent efforts, IRSF has made a substantial impact on the Rett syndrome community, fostering hope and progress towards finding a cure.